Wanna write a book?

From the publisher of my book...You can email her directly (contact info, below) if you're interested. Best, -pete

"I’ve been thinking about two possible new books on stroke for our list and I wondered if you might know of anyone who might be interested in writing them:

 

A Caregiver’s Guide to Stroke: a handbook to help the caregiver, addressing all of the issues and best practices they should know about: creating and managing a health care team, dealing with the various physical, emotional and cognitive issues, etc. The right author would most likely be a social worker, therapist, or professional caregiver.

 

Myths vs. Facts on stroke: a book aimed at dispelling the myths/misinformation about the causes, treatment, physical and cognitive impact of stroke." 

Julia Pastore
Executive Editor, Demos Health Publishing

jpastore@demoshealth.com

Don't stop. Don't stagnate. Don't let a lull convince you recovery has ended.

What about "Long-Term Rehab Management of Stroke"? What do we know about stroke recovery as we get into months and years and decades? 

What does this post have
to do with this girl?
Nothing!

The first thing we know is that its nonsense to believe that recovery has some sort of expiration date. I like the idea of someone coasting for a month or longer and then recommitting themselves to recovery. Its never too late.
 

What does tend to happen is "adaptation." The word refers to the notion that if you do the same techniques you get the same results. Survivors and therapists can both cause adaptation. Therapists can get used to what they use and go automatic and unimaginative with treatments. Survivors can get lazy and not push against their present abilities. 

Bottom line: There is good  evidence in the research that so-called "chronic" survivors can continue to make progress.

Don't stop. Don't stagnate. Don't let a lull convince you recovery has ended.

The most important gizmo for recovery is you

I do stroke recovery talks to PTs and OTs (and a mix of other clinicians, survivors and caregivers) all over the US. Today I'm in Cheyenne, WY. 

Between Casper and Cheyenne

I've had many conversations with therapists over the years. One of the things that's remarkable is how little consistency  there is in the tools therapists have. Some therapists have every gizmo known to man, others have little other than their creativity and a few standard tools. Imagine the difference between working in a leading-edge rehab hospital vs. an on-the-road home care therapist.

That's me. The king of PowerPoint.

Do "stroke recovery machines" make a difference? Within reason, no. There are a few tools that may be essential. For instance, electrical stimulation, parallel bars and a mirror may be essential at some points in some survivor's recovery. Really, much more important is the training of the therapist. This is not just true in stroke rehab but in many areas of medicine; outcomes are directly tied to the training of the clinician. For most survivors, the knowledge of the therapist is the most important gizmo. 

But remember, they'll "discharge" you at some point and then the most important gizmo for recovery is you (and caregivers!).

SEMINAR STUFF

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Note: Info in links may be subject to copyright laws. 

TREATING

Electrical Stimulation (E-Stim)

• E-Stim to Reduce Spasticity in the Leg
• Upper limb electrical stimulation exercises
• All The Things E-Stim Can Do For Stroke Recovery 
• General considerations for E-Stim

Bilateral Arm Training

• BATRAC (Bilateral Arm Training with a Rhythm) (see "TRAINING" for clinical dose) 

Mirror Therapy

• Mirror Therapy
• Mirror Therapy II
• Mirror Therapy for Intention Tremor

Increasing walking speed 

• Speed-Dependent Treadmill Training 
• Double walking speed with verbal encouragement (QUICK READ)
• Double walking speed with verbal encouragement (FULL STUDY)

Lower extremity Constraint Induced Therapy

• L.E. Modified Constraint Induced Therapy

Sensation Recovery

• Lower extremity
• Upper extremity 

Repetitive and demanding practice decreases spasticity and “pathological” synergies

• Constraint induced therapy reduces spasticity
• Intensive training in patients with increased muscle tone improves function without exacerbating spasticity
• Constraint induced therapy reduces spasticity and increases functional use
• Constraint induced therapy increases strength and decreases spasticity

VIDEO

• Taping for genu recurvatum
• How a Baclofen Pump Works
• GRAPHIC: Selective Dorsal Rhizotomy (starts @ 2 min in)
• GRAPHIC: What your brain really looks like
• GRAPHIC: Surgery for Acute Subdural Hematoma
• Great ideas for survivors to self-recover by "super-survivor" Kathy Spencer 
• Brilliant vid on the great work MDs do to lessen the effects of stroke-- fantastic graphics!
• Kahn Academy: types of ischemic stroke

RESEARCHING

Researching Stroke Recovery

• Evidence-based review of stroke rehabilitation
• StrokEngine: Tons of info for therapists and survivors
• PubMed Central: PubMed Central: Free Journal Articles
• Cochrane Database of Systematic Reviews

Clinical Guidelines from around the World

• New Zealand
• UK
• Australia
• USA/VA/DoD
• Scotland 

Information About Other Forms of Brain Injury

• Evidence-Based Review of Brain Injury

Find Stroke-Recovery Research in Your Area

• National Institute of Health
• Internet Stroke Center
• CenterWatch

Two Free Stroke-Specific Magazines

• StrokeSmart Magazine
• Stroke Connection Magazine

MEASURING

Measuring Recovery

• The best Rehab Outcome Measure search engine EVER!
• Calculator to score patients accurately for G-Code Med. B (Claims-Based Outcomes Reporting [CBOR])
• TONS MORE stroke recovery tests
• Nottingham Sensory Assessment
• Walking Speed: the Sixth Vital Sign
• 10m Walk Test: What Does the Data Mean?
• FUGL- MEYER: Rules for UE and LE
• FUGL- MEYER: Score sheet for UE and LE
• Motor Activity Log (MAL) Manual
• The Modified Ashworth: U.E and L.E (clean) 

Cognitive (mental) Tests

• Mini-Mental Exam (copyrighted)
• VA SLUMS Exam

READING

Articles by Pete

←See list of selected articles on the lower left column of this blog

REFERENCING

• References for information used in the seminar

RESOURCES

Amazing CIT dissertation by STACY L. FRITZ that includes:

• WOLF MOTOR FUNCTION TEST
• Motor Activity Log (MAL) Manual
• Fugl-Meyer Upper Extremity Motor score sheet
• CIT Home Diary
• CIT Daily Activity Log 
• BEHAVIORAL CONTRACT FORM

Does walking early (sometimes within 24 hours) help or hurt?

·  An article where they interviewed therapists, docs and nurses: Conclusion: Our study shows that most clinicians had concerns in relation to early mobilisation of stroke patients and more clinicians had concerns for haemorrhagic than for ischaemic stroke.

· An article looking at very early mobilization and depression: Conclusion: Very early mobilization may reduce depressive symptoms in stroke patients at 7 days post-stroke.

· Early mobilization out of bed after stroke may be all good: Conclusion: It seems to reduce severe complications but not cerebral blood flow:

· Early mobilization out of bed after stroke, maybe: Conclusions: Insufficient data are available to prove the beneficial effects of early mobilisation after stroke.

· A Very Early Rehabilitation Trial for Stroke (AVERT): Conclusions: Very early mobilzation of patients within 24 hours of acute stroke appears safe and feasible.  

· The LEAPS trial (the largest study ever done on post-stroke rehab): "patients who received early locomotor training experienced more multiple falls."

A GREAT OT BLOG!

• The Anonymous OT 

Why Dynasplint is half dead (and all dead for survivors)

Do you have muscles tightened by spasticity? 

Sarcomeres are the small units in muscle that contract when your muscles contract. (Great image here. Look at the bottom right corner.)  Sarcomeres will increase in numbers when muscle is put through a prolonged stretch. Increasing sarcomeres is how muscles are lengthened. Lengthening of muscle and increasing sarcomeres increases flexibility. Which is a good thing because we can talk about neuroplasticity until the cows come home but if your arm (or whatever) "won't go that way," all bets are off.

 
OK. So how might you increase the number of sarcomeres? One way that many clinicians think works is called "dynamic splinting." The idea is that you'd wear something that would hold you in a position that would stretch you. If you could wear it at that posture for 2-3 hours, the clinician would "dial in" a more "aggressive" range of motion. Over time you'd gain sarcomeres which would allow you to have more range of motion. 

Sounds groovy, right?

It works for, say, marital artists who want flexibility so they can KICK ASS.

Stretching ROCKS! Sometimes!

You stretch, you get a longer muscle, everybody's happy!

But yeah. That whole science thing gets in the way. Don't you just hate science?

It turns out that the way to elongate (add sarcomeres)  "normal" muscle is nothing like the way you'd do it in spastic muscle. To stretch spastic muscles so they gain length, the stretch must be held at least 48 hours. And dynamic splints are not kept on for anywhere near that long; a few hours, max. 

And here's another little interesting tidbit. The 600 pound gorilla of dynamic splints is a company call DynaSplint (get it?) and they've had a little bit of trouble lately. The kind of trouble where they may have defrauded the Federal Govmint. And they laid off 500 workers in one day. Which makes sense since it was a DynaSplint salesperson that was the whistle-blower that brought the whole company down. Which then triggered their bank to stop their operating budget.

And while I have no idea of any of those problems are warranted, one thing I do know is that they are fraudulent in another way. Again and again they claim that their splinting systems help folks with spasticity. They also claim they increase muscle length. Don't buy it!